Head is hip hop trip trot all over the place, so much to think about and yet nothing to think about either. Website up and running, business slow, feel fed up, going nowhere yet I really dont want to go anywhere lol, no money.... nothing new there ..... feel like a change..... what change? Oh and crap weather. Frustrated to hell at the moment, I would just like my health back !!! Although it certainly has made me re evaluate my life and I have done a lot that I would never have done before there also is so many restraints. All I seem to do is battle to get things which I think I need, we only have one life and I think we have to look after ourselves cos am sure no one else damn does but why are we all such a number and not a person. I might have said before but I have a dickky tikker and I dont really like to dwell on it too much .... be positive get on with life is my motto but its simple things that get me.
Firstly I have to get my bloods done every two weeks because I take anticoagulants and therefore my blood has to stay within a certain range of thickness/thinness, so its always a big load of blood for just one little drop. Its too expensive to go to the anticoagulant clinic ... so they say ..... where they have a machine which pricks your finger and blood gets tested there and then, end of. Oh no I have to go to my GP, lovely blood person there though, I get a nice syringe full done, it gets sent off to hossie with my booklet, hossie then return booklet by post with change of dosage if necessary and a phone call! Surely all that must cost more than just going for a simple prick on the finger! But ...... I can buy a machine for myself at a cost of £300 which I would if I had the money!! Also using the normal syringe method will cause scarring on the vein so if and i know I have to have this done for the rest of my life what a mess it will be eventually!!
Secondly I had an appointment with my Cardiologist Monday, they wanted to see me by the way, sent me a letter saying so yet there was no appointments til December hmmm. Several phone calls later by me I finally got a cancellation this only took since May I think, and lo and behold they showed me recent tracings of a tape I had done and said they needed to get in touch with my other hospital to ask whether we should be thinking of ICD (internal defibrillator) and/or anti arrythmic drugs. Wow I had already had a copy of the findings and knew this already why in the hell do they need to see you to tell you a simple phone call would have been enough! Mind you Ive beenthrough all this before when I was diagnosed in 2006 they wanted me to have one then but its always cost cost cost, if I collapse I will get one immediately, thats providing I recover of course, what a joke!! Anyway the fact that my heart is not pumping properly, that it goes off sometimes with a mind of its own and that my whole life has changed since 2006 .... wont bore you with all the in and outs of meds, diet etc etc lol, doesnt seem to count .... its all down to money especially where I live and of course they follow the NICE guidelines to the letter never mind that other people within this country can get an ICD without any problems at all. As you can tell today Im sort of letting it all out, once this post is written I can forget about it and get on with stuff as usual. Tomorrow is another day and its volunteering day and I love it, there is always peeps out there worse than us that I can try and help.
PS If you want to find ot more about cardiomyopathy please click onthe link at the top right hand side of the page, and if anyone knows anyone who donates to charities on a regulart basis and is looking for a new one please give the Cardiomyopathy Association they are brilliant and without them I would not feel so positive about my condition and also I wouldnt have made such brilliant online friends. Please pass onthe word about the charity wherever you can. Thanks xxx
Secondly I had an appointment with my Cardiologist Monday, they wanted to see me by the way, sent me a letter saying so yet there was no appointments til December hmmm. Several phone calls later by me I finally got a cancellation this only took since May I think, and lo and behold they showed me recent tracings of a tape I had done and said they needed to get in touch with my other hospital to ask whether we should be thinking of ICD (internal defibrillator) and/or anti arrythmic drugs. Wow I had already had a copy of the findings and knew this already why in the hell do they need to see you to tell you a simple phone call would have been enough! Mind you Ive beenthrough all this before when I was diagnosed in 2006 they wanted me to have one then but its always cost cost cost, if I collapse I will get one immediately, thats providing I recover of course, what a joke!! Anyway the fact that my heart is not pumping properly, that it goes off sometimes with a mind of its own and that my whole life has changed since 2006 .... wont bore you with all the in and outs of meds, diet etc etc lol, doesnt seem to count .... its all down to money especially where I live and of course they follow the NICE guidelines to the letter never mind that other people within this country can get an ICD without any problems at all. As you can tell today Im sort of letting it all out, once this post is written I can forget about it and get on with stuff as usual. Tomorrow is another day and its volunteering day and I love it, there is always peeps out there worse than us that I can try and help.
PS If you want to find ot more about cardiomyopathy please click onthe link at the top right hand side of the page, and if anyone knows anyone who donates to charities on a regulart basis and is looking for a new one please give the Cardiomyopathy Association they are brilliant and without them I would not feel so positive about my condition and also I wouldnt have made such brilliant online friends. Please pass onthe word about the charity wherever you can. Thanks xxx
Rant over.
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